Guestbook
Post a Comment
- Oops, you forgot something.
254 Comments
Reply
Catherine
05:09 PM on July 26, 2010
Cindy says...
You are obviously very knowledge about our disorder. I first noticed my symptoms at age 23--which I thought was extremely young until I started this research. I am concerned about my children. I keep seeing an ad from some guy from a news station who stopped his tremors without medication. It pops up on almost every site. Do yo take medication? Is it effective? What's the deal about B12? And Linda, hang in there and go to the doctor. If the first one is not right for you, move on. My first doctor recommended Valium. I didn't go back for ten years! Ten years later, I got the right one.
Hi Cindy, my son also has E.T. but my girl is completely tremor free. To be honest I am never too sure about those ads. I have often thought of writing an e-book but at this minute wouldn't feel comfortable taking money from folk as I don't know everything I could possibly know about the condition.
The B12 theory is very interesting and I thank Joe for bringing it to my attention.. If you got to http://www.essentialtremorinfo.com/joesdiscovery.htm it explains it
Reply
Cindy
04:47 PM on July 26, 2010
You are obviously very knowledge about our disorder. I first noticed my symptoms at age 23--which I thought was extremely young until I started this research. I am concerned about my children. I keep seeing an ad from some guy from a news station who stopped his tremors without medication. It pops up on almost every site. Do yo take medication? Is it effective? What's the deal about B12? And Linda, hang in there and go to the doctor. If the first one is not right for you, move on. My first doctor recommended Valium. I didn't go back for ten years! Ten years later, I got the right one.
It helps so much to hear that others are having the same difficulties Catherine. Thanks for this very informative site. I have been on beta blockers for years now for MVP, and I am guessing unless the dosage is higher, than the beta blockers are not working for me. What is next?? I still am so scared about all this, also it is embarrassing to have people staring at me. Thank you again Catherine, just reading other posts, shows me I am not alone in this.
Reply
Catherine
08:36 AM on July 21, 2010
Hi Linda. I put up with my head nodding furiously for 4 years because I was also terrifed I had Parkinson's. The neurologist basically asked a bunch of questions and I had a very brief neurological examination. He told me at the end of the consultation that I had E.T. I was given beta blockers and within 2 weeks my head nodding had stopped. If you want a fuller explanation of the neurological examination drop me an email and I will go through it with you
Forgot to say I am new to this site. I will see my doctor in 6 weeks and hopefully get a diagnosis. I can't even begin to tell you how terrified I am. I just don't know what to expect and don't want to hear that symptoms will worsen. I truly can't concentrate on anything else at this point. So, so scared!!!!
Reply
Linda
11:12 AM on July 20, 2010
I am terrified right now and becoming depressed because of my head nodding. I feel like people are staring at me and I am really bothered by that. I have not been to a doctor as of yet for a diagnosis but I found this site very helpful. I am praying that it is not Parkinson's, if it is, I don't know how I will deal with that. I already suffer from depression and anxiety and take antidepressants, so I don't need a diagnosis that will depress me further. So scared!!
Reply
Lloyd
04:55 AM on July 18, 2010
I am 22yrs old and I have had tremors since I was about 14. I have had people accuse me of being an alcoholic or even a drug user. The tremors are mostly in my hands but I have had them spread throughout my body. I usually don't even notice it anymore but sometimes when I am trying to do a task that takes concentration and a steady hand the tremors make it almost impossible. This website has been very informative in giving me an answer to why I shake all the time and I thank you for creating it, now maybe I can get treatment for it.
Reply
Catherine
08:37 AM on July 12, 2010
Thank you for your lovely comment, Glynis. When I first started building the site I wasn't sure if it would be popular, all I knew was that I wanted to get information out there in words that everyone would understand. After just a few months folk started becoming involved and sending me their stories, theories etc. re E.T. and I am pretty sure that with all the input from visitors and members the site has evolved into something completely different to any other site out there.
Thanks again
Thanks again
Reply
Glynis
04:28 PM on July 11, 2010
This website was very informative - thankyou for taking the time to put it together.The details and other peoples input makes it the most interesting site I have read all night,
Reply
Katherine
02:13 AM on June 27, 2010
Hi Catherine
Thanks a lot, looking forward to hearing what you discover.
Katherine
Thanks a lot, looking forward to hearing what you discover.
Katherine
Catherine says...
Hi Katherine. The last time I spoke to Jo via email he seemed to be doing well with the vitamin B12. I will email him today and ask him to give me a full update and I will add his comments to the site