Benign Essential Tremor Info
Essential Tremor - The Essential Facts
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280 Comments
My Mom and Dad noticed my tremors as a child. Obviously i didn't notice them myself. Now im 16 turning 17 my tremors stand out more than me. They affect me in many ways. I've never known anyone else have them i always thought i was the odd one out but reading about how all you others suffer the same as me is great in a odd way. at the age of 9 i went threw so much, was on upto 12 tablets a day and at the age of 11 i gave up. I find it an embarrasment and i cant see a future ahead of me whilst i have this. I get upset quite frequently about them. Now i have decided to go back to the doctors and see weather there is anything more stronger now i am older. I've had thoughts about the surgery option, if only there was a cure! if anyone has had any medication that they have found really helpful please please PLEASE, give me a email- michala2009@live.co.uk Thanks so much!xxx
I've had my tremor for 10 years I'm 39 now, it's progressively got worse. It affects my whole body but not my head... I've tried all medication none has worked!!! I have also been offered DBS (I'm too scared to have this done) can anyone advise what I can do to help?? I excercise weight train eat healthy
My sister works in a lab and she said that it can be misdiagnosed simply because some patients, like yourself, is Vit. B deficient. I know my neurologist is checking my vit b level. I have a mri on Thurs.
My hands started shaking when I was 12 years old, I turned 21 in July. At first it was just in my hands. When I was 14 my doctor did blood work, nothing came back so he decided I was having to much caffeine...I hardly ever had it. Then when I was 18, I saw my first neurologist, another round of blood work and a MRI but nothing showed up, he basically told me the shaking was all in my head and I was causing it to happen. I stopped going to him after that and stopped trying to figure out what was causing this. It seemed like no doctor wanted to help. However, back in February my shaking reached a new level. It was becoming difficult for me to perform simple tasks at my job and then in June my mouth started chattering. I couldn't open my mouth without it shaking and it was difficult to talk. My mom rushed me to the ER and had to sign my name for me because I was unable to do so. Once again, blood work, CT scan, urine tests...all fine. Then I heard the doctor say "Essential Tremor" he said his brother had it and mine looked very similar to his. For the first time someone was helping me. I started going to a new neurologist, she started me on bp meds. They worked but the side effects were too much. I'm currently on primidone now. I just got a phone call from her this evening though and my blood work came back with vitamin B deficiency. She said that's why it's probably gotten worse. All these years though and no one had bothered to check my vitamin levels. I was so excited to come across this site though, it has so much information to offer. Thanks for that.
Thank you for the info. I was diagnosed with BET about 10 years ago. The neurologist said you have BET. You were probably born with it and you are going to die with it. That was it. I never knew there was medication available for it. I wouldn't have even gone looking for more informations had it not been for the extreme shaking this summer. I have found any kind of resistance to my hands and fingers and I shake. Even trying to smile, I can't hold it for very long without tremors. This has been very informative. Thank you Catherine!
Excellent post, Nate - short and to the point. It is very easy for folk with B.E.T to fall into the trap of relying on alcohol to still the tremor
Nate Healy says...
I am 40 Yrs of age and have suffered From B.E.T. since childhood. Have abused alcohol before as thought it would help, but this makes it ten times worse. Better to be properly diagnosed and getting medical help than driving yourself to an early
Grave.
I am 40 Yrs of age and have suffered From B.E.T. since childhood. Have abused alcohol before as thought it would help, but this makes it ten times worse. Better to be properly diagnosed and getting medical help than driving yourself to an early
Grave.
Grave.
Hi Adriane. It is described as being slowly progressive but, from my own experience, I had shaky hands all my life and the tremor stayed the same up until now. The only change was at age 45 when I developed a head tremor. The neurologist prescribed Beta Blockers and they stilled the tremor. If the tremor worsens ask your doc about medication.
Catherine
Catherine
This is the only site i have found that was actually informative. Thanks for all the info. I found out I had BET a couple of months ago and im only 14 and its only in my hands. I was wondering if all people suffering from BET had their tremors worsen as they got older because it worries me. Thanks!
it was intersesting to read about it i have not been able find any other website
i have had it most of my life and but it off until i was 35 years old
i have had it most of my life and but it off until i was 35 years old
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