Benign Essential Tremor Info

Essential Tremor - The Essential Facts

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Apologies To Everyone

Posted by catherine on October 31, 2008 at 9:05 AM

I feel I have to apologise for my lack of interaction on the website lately. I am checking the guestbook, forum and new members each day but don't have much time to get back to everyone personally at the minute as my 97 year old mother had a stroke and most of my time is being taken up with sitting with her and running errands etc.

I am extremely pleased with the direction the website is taking and get many lovely (and sad ) emails from folk who have found the site (I can be contacted at cknholidayhomes@hotmail.com if anyone wants to chat or generally let off steam about this horrible condition. I am hoping, at some point, to get a survey up and running but it looks like it is going to be a huge task as it will have to dig deep to give a detailed picture of the folk who end up with E.T. I am pretty sure that there has never been a detailed survey carried out before of Essential Tremor but feel free to correct me if I am wrong. Once I have all the questions in place (there will be a lot of them!!!) I intend to run the survey for 1 year to see if I can come up with any similarities between us, apart from it being genetic.

Anyway folk, I am having a very bad day with my tremor. I wakened during the night to go to the bathroom and was so shaky from head to foot that I was banging into the walls. I went back to bed and got up this morning to the same. I have had a lot of trouble navigating the stairs in my home, difficulty with the computer, Hell, even the skin on my face is trembling which is pretty difficult for a gal who puts on make up every day in life. Oh well, it's Halloween - maybe I'll get away with the smudged make up today!!!

Catherine

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2 Comments

Reply Carol smith
11:50 AM on June 19, 2009
Is any1 having problems with these lower back and walking
Reply Susan
10:40 AM on November 10, 2008
I under went bi-lateral DBS (deep brain stimulation) in June of this yr. The surgery did not accomplish what I hoped for, in fact it introduced another problem, dysarthria( slurred speech). When the electrical device is off my tremors are in full for force as usual. When it is on the tremors are better but my speech is affected. <br>Anyone out there having these problems?